CHO-KLAT and H-FIT are rigorously developed questionnaires designed to measure health-related quality of life in, and burden of caring for, children with haemophilia. They are intended for use by:

• Researchers
• Clinicians
• Health-care teams involved in the care and study of paediatric haemophilia populations

These tools can be used in clinical practice and research for both child and caregiver perspectives. They can be administered at a single point in time or longitudinally to track changes over time.

Whether you are planning a study, conducting quality improvement, or supporting individual care, the CHO-KLAT and H-FIT provide a structured, patient- and family-centered approach to understanding lived experience with haemophilia.